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RE: Mental Health Encouragement - One Stop Thread

 
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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 12:25:03 AM   
Melissa11102006


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I'm doing better today, didn't have to take my extra 0.5mg. Risperdal. I'm starting the process of cleaning and sorting papers and stuff for our move.

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 1:30:45 AM   
A-Mighty-Oak


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Hi Everyone, been still having some sleepless nights, even as I remain tired.

Work has been very good this week, but very busy too! Things are much better with my boss. As long as things are good, I will take it.

I have been going to the dentist to get dental work done. I have a deep scaling that needs to be done later on today.

Still feel like things should be better, but I am ok.

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Mental Health Encouragement - One Stop Thread - 2/20/2010 9:37:34 AM   
pink..


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I had a really good day yesterday. Temps in the low 40s, sunshine and I saw a few blades of grass sticking up through the snow. Springtime will come! I shut off the heat and opened some windows. Normally I can clean house for 10-20 before starting to have too much pain to continue on. Yesterday I cleaned house for almost four hours straight. I had plans for a nice supper until I found out that my husband wouldn't be home for it. He told me that we could have that supper tonight. I was stressing over whether or not I would have a good enough day today to fix it. I decided to stop stressing over that. If I'm not having a good enough day, he can fix the supper that I was going to fix.

We did get a little bit of snow last night. Today is probably going to be in the low 40s again, but it doesn't look like the sunshine will appear. More snow is expected today. I'm hoping that it holds off until later in the day. I'd really like to go to a meeting today and I was thinking about taking dd out to lunch and buying her a new pair of jeans.
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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 3:04:52 PM   
A-Mighty-Oak


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Glad to hear that you had a good day Roberta!

I am very aggravated right now, that is noise intolerant again. My neighbor was vacuuming upstairs and it was very loud! So loud in fact that when it was done, I had to shut off the TV because that was annoying me too! Now it is quiet with nothing but the clicks of me hitting the keyboard. I dunno why noise bothers me so much!

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 5:15:59 PM   
solo_soprano24


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I missed like a million posts. I read them all, but then forgot to reply. I remember some compliments, so for those I'll say thanks. :) I do hate my avatar pic though, lol. I might change it.

I'm having a hard time physically and emotionally. I don't have anyone in-person to talk to; I sometimes send messages back and forth with those in my online support group. The docs told me they can't do much else for me, and knowing the conditions, I agree. I'm hitting on medical futility, and I can think of only one more treatment to anyway. I can't get my doctor to call me back or give me an appointment, and he'd said he was going to send me on to the Mayo anyway. I just told myself that it's pointless. I've been praying for 14 years to heal; all I do is get worse and they have to do surgeries for random things that pop up, then I get MUCH worse. I think I'm going to stop going to the doctor, find a counselor and try to find a way to cope. I'd always wanted to date, get married and have kids, but it's not going to happen unless a miracle occurs. I had been holding out hope that the next thing I'd try would help... but all the nexts failed, until I got to the end of things to try.

I just want to be able to have some fulfullment knowing that I won't have a husband and kids (or be able to date again). People generally don't understand what I have to deal with...they end up trying to tell me how a husband or kids aren't everything...but just like I wouldn't tell an infertile woman that kids aren't everything, I don't see why people would say it to me or any other female like me (and I find most of the time that the ones telling me that already have gotten married, maybe had kids and don't have these issues I have).

I'm an optomist, but I also believe in keeping it real. I'll find myself talking to my girlfriends about guys, and some of them are trying to find boyfriends....then I start thinking about when I get married, then come back to the reality that it's unlikely due to what's wrong with me. Anyway, that's my vent. I don't expect anyone to have answers. I just don't have anyone to talk to. Mom keeps telling me to find a random specialist, but the best specialist in the world can't do much when you've tried all the treatments that exist and there's no improvement.

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 5:28:37 PM   
Melissa11102006


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I prayed for you, solo_soprano24.

Mike, glad you are getting the dental issues worked out. Noise issues bother me too.

Roberta, it's good to get things done, even if other people like your dh don't seem to appreciate your efforts enough to come home to dinner. Praying for you as well.

How is everyone else doing today?

I'm doing well. I didn't have to take my extra Rispeerdal yesterday, or today so far. It really zombied me out the other day. I'm still busy doing laundry and other work, despite a knee that's bothering me due to having gained 40+ lbs.

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 5:45:42 PM   
A-Mighty-Oak


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((((((((((((Tamara))))))))))))))

I am doing better now, I do need to eat dinner though.

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Mental Health Encouragement - One Stop Thread - 2/20/2010 7:40:46 PM   
pink..


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My mood took a bad turn for some reason, but I'm starting to feel better now.

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 8:28:55 PM   
A-Mighty-Oak


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((((((((((Roberta)))))))))))

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RE: Mental Health Encouragement - One Stop Thread - 2/20/2010 8:38:25 PM   
Kath


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quote:

Mom keeps telling me to find a random specialist, but the best specialist in the world can't do much when you've tried all the treatments that exist and there's no improvement.


But maybe this random specialist will send you to Mayo, since you can't get in to see your dr to do so.
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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 4:53:42 PM   
A-Mighty-Oak


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It seems rather slow in here lately...

I am still having trouble sleeping, but my body is in a relaxed state right now.

I have been getting dental work done, so that is boosting my self esteem a little bit.

Things at work seem to be better, but still a bit stressful though.

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Mental Health Encouragement - One Stop Thread - 2/21/2010 6:05:14 PM   
pink..


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I'm having a hard time with what my pdoc wants to "test" me for. I think I'd rather not have a diagnosis than to have that.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 7:20:52 PM   
A-Mighty-Oak


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My whole situation was that I was desperate for change. 90% of people said that counseling would do me good, but I always also heard that it was up to me to go.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 7:29:54 PM   
manda59


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quote:

ORIGINAL: pink..
I'm having a hard time with what my pdoc wants to "test" me for. I think I'd rather not have a diagnosis than to have that.




What does he/she want to test you for?

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 7:42:41 PM   
A-Mighty-Oak


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I have been rather restless lately, this is a new development for me.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 7:43:23 PM   
magdaleine

 

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quote:

I think I'm going to stop going to the doctor, find a counselor and try to find a way to cope. I'd always wanted to date, get married and have kids, but it's not going to happen unless a miracle occurs. I had been holding out hope that the next thing I'd try would help... but all the nexts failed, until I got to the end of things to try.
There's no reason why you can't continue to see the doctor AND find a therapist to help you cope. I've discovered that when we're looking for and wanting something (like marriage or having kids), they seem illusive but then we decide to not try anymore and move on to other things and it's in the midst of those other things that what we've most wanted happens.

I don't know what your issues are, Solo Soprano but I think about my sister who desperately wanted marriage and a good job and never found either (well, she married once but it didn't last too long). What she didn't realize was that her behaviour and negative attitude drove everyone away from her. I'm not suggesting that you have that problem. The illustration is that she wasn't aware of why she didn't succeed and put the blame everywhere except on herself.

quote:

People generally don't understand what I have to deal with...they end up trying to tell me how a husband or kids aren't everything...but just like I wouldn't tell an infertile woman that kids aren't everything, I don't see why people would say it to me or any other female like me (and I find most of the time that the ones telling me that already have gotten married, maybe had kids and don't have these issues I have)
The reason it's the married people with kids who tell you that a husband and kids aren't everything is because they've learned it from experience. I've had 36 years of a very painful and abusive marriage. I can tell you for sure that marriage is NOT the solution for loneliness or being fulfilled. I suppose it can be and is for many but it also isn't for many.

quote:

Mom keeps telling me to find a random specialist, but the best specialist in the world can't do much when you've tried all the treatments that exist and there's no improvement.
Perhaps a specialist may know of a treatment that could help you that you haven't come across yet.

I'm sorry you're struggling so hard and that life seems to have dealt you such difficulties. I hope you can find some answers and solutions.

Melissa, I can sympathise with the bad knee. It's hard to function with one.

Mike, I'm glad you're doing better.

{{{{{{{{{{{Roberta}}}}}}}}}

quote:

I think I'd rather not have a diagnosis than to have that.
You'll still have whatever it is you'll have whether you get a diagnosis or not but if you get a diagnosis, maybe they can do something about what's wrong to help fix it.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 7:55:55 PM   
A-Mighty-Oak


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Hi Maggie, my knee has been bothering me a lot lately as well. I get worried that I will not be able to do my job anymore because of it.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 8:56:36 PM   
magdaleine

 

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If it's that bad, see a doctor about it.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:05:24 PM   
RainbowSkies


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quote:

ORIGINAL: ImBrandNew

It seems rather slow in here lately...

I am still having trouble sleeping, but my body is in a relaxed state right now.

I have been getting dental work done, so that is boosting my self esteem a little bit.

Things at work seem to be better, but still a bit stressful though.



I have been quiet lately because I really haven't had much to say. I am glad you feel relaxed, but sorry you can't sleep. Too bad you live so far away, we could be night owls together. LOL. I don't sleep much of the time unless I am super depressed, but then again, that is not a restful sleep. I don't even think I know what one of those feels like.

Roberta, if you are uncomfortable with what your pdoc wants to test you for, then ask if that is his/her specialty. If not, definately say no and find someone who specializes in that. I know that sometimes my pdoc will tell me things that I know are not really going on. You know the major things and if you are having difficulty accepting that, then I would say if you feel that is not a problem, then don't pursue it. But that is just me.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:17:41 PM   
solo_soprano24


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There's no point in my continuing to go to doctors, UNLESS they come up with a new treatment or a clinical trial. I was going to see a famous doc in NY (also at the Mayo), but he does the same thing as my doc for the kind I have...and my doc is one of the best in the country as well. His mentor was THE best, but he died of cancer. He had been the one treating me. I'm just out of options, and I don't see the point in wasting a bunch of my resources for him to tell me that to my face when I've already been told, I guess. (Plus, I don't have the resources right now.) BTW, marriage and kids can't happen in this situation. My mom has told me the same thing (when you stop focusing on it, that's when it happens), but it's not that kind of situation. You try to heal SO THAT you can marry and have kids. It's not so much about having/finding someone to marry, but having someone to marry and not being able to because of the illness. Going to doc after doc after doc doesn't do much, because there are only so many treatments...and I've gone through all of them. I might be able to find something overseas, if I ever visit another country. Right now, there's nothing I can do, but if a study or something comes out for my type of the disease, then I might try it...as long as I can't get worse. I already have days when I can't sit down or walk, so I don't want to become debilitated like some women do. ...not from a medication anyway.

With other people's comments, it's not that I don't think they don't know from experience, but most of the time people are doing this "I know how you feel" stuff when they can't know and probably never will. I'm dealing with women whose husbands are leaving, who don't feel like women anymore, then they've lost their jobs because they cannot walk or sit (or function), which means they then lose health insurance...some go crazy because of the pain and the loss of life quality, which can be quite extensive. It's just something that you can't talk someone into feeling better about, and women with the disease get tired of people minimizing the problem with some kind of statement of how the grass isn't greener on the side that they can never be on because of their medical problems, if that makes sense.

< Message edited by solo_soprano24 -- 2/21/2010 9:42:14 PM >


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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:34:04 PM   
solo_soprano24


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Hey, Mike, what have you been doing about the restlessness/sleep issues? Have you tried natural stuff?

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:51:50 PM   
Melissa11102006


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Hi and ((((((Hugs)))))) to everyone!

I'm tired tonight, but doing well. Just resting tonight before doing lots of work starting tomorrow. Been catching up on my laundry though, so that's good.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:56:48 PM   
A-Mighty-Oak


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quote:

ORIGINAL: magdaleine

If it's that bad, see a doctor about it.


I already have, they recommended physical therapy, which goes against my yearly $1,000 deductible. I suppose I could dig up $150 to $300 somewhere per visit.


quote:

ORIGINAL: RainbowSkies

quote:

ORIGINAL: ImBrandNew

It seems rather slow in here lately...

I am still having trouble sleeping, but my body is in a relaxed state right now.

I have been getting dental work done, so that is boosting my self esteem a little bit.

Things at work seem to be better, but still a bit stressful though.



I have been quiet lately because I really haven't had much to say. I am glad you feel relaxed, but sorry you can't sleep. Too bad you live so far away, we could be night owls together. LOL. I don't sleep much of the time unless I am super depressed, but then again, that is not a restful sleep. I don't even think I know what one of those feels like.


Now Rainbow, where are you located?


quote:

ORIGINAL: solo_soprano24

Hey, Mike, what have you been doing about the restlessness/sleep issues? Have you tried natural stuff?


Nothing yet, but I am in counseling though. I am sure that they can help somewhat.

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RE: Mental Health Encouragement - One Stop Thread - 2/21/2010 9:57:53 PM   
A-Mighty-Oak


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Glad to hear that you are doing better Melissa!

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Mental Health Encouragement - One Stop Thread - 2/21/2010 10:00:31 PM   
pink..


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((((Solo)))) I don't understand your medical condition because I've never had to deal with it. I do know that it is real. I do think of you often and pray for you as well.
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